For a family who has a child with life-threatening illness, getting the right kind of support is especially challenging.
Kangaroo Kids is a unique pediatric program dedicated to offering individualized and all-encompassing care to children and families who face a life-threatening illness with sensitivity and skill. It is based on the belief that children and families can thrive best when they're encouraged to care for their child at home, with resources and support to sustain a normal family life in every possible way.
Pediatric Supportive Care
Children with life-threatening illness are children, first and foremost. Kangaroo Kids team members recognize this and are sensitive to how they support a child to be as much in his or her normal everyday life as possible.
The Kangaroo Kids team knows that with their illnesses, kids need to feel they can control some things even while they can't control others; they look for ways to support a child's independence. Kangaroo Kids helps all members of the family address and manage the physical, psychological, social and spiritual aspects of the illness' impact on the child and family. This includes parents, siblings and grandparents; all family members are taken into consideration. From the beginning of the diagnosis, they become partners and develop deep relationships with the child and everyone in the family.
Kangaroo Kids can benefit children and families who are affected by illness or conditions that limit life expectancy, such as:
- Neurodegenerative disorders
- Severe metabolic or genetic diseases
- End-stage cancers
- Severe neuromuscular diseases
- Inoperable cardiac defects
- Severe congenital anomalies
- Severe multi-system disorders
Pediatric Supportive Care is different from hospice. You do not need to choose to stop treatment measures for the child. The child can get care at any point in his or her illness.
Goals of Our Pediatric Supportive Care
- Creating the best quality of life for children and their families
- Relieving suffering
- Controlling symptoms
- Encouraging children to be at home with their families
- Providing caring expertise and support so families feel they have shoulders to lean on and they're not alone
- Encouraging children to maintain their independence and a sense of being respected for who they are
- Helping family members move through their emotions and help resolve spiritual questions