For a family who has a child with life-threatening illness, getting the right kind of support is especially challenging.
Kangaroo Kids is a unique pediatric program dedicated to offering individualized and family-centered care to children and families who face a life-threatening illness with sensitivity and pediatric proficiency. It is based on the belief that children and families can thrive best when they’re encouraged to care for their child at home, with resources and support to sustain a routine family life in every possible way.
Pediatric Supportive Care
Children with life-threatening illness are children, first and foremost. Kangaroo Kids team members recognize the unique needs for your child to maintain as much normalcy as possible.
The Kangaroo Kids team understands your child’s need for a sense of control within their limitations and look for ways to support a child’s independence. Kangaroo Kids helps all members of the family address and manage the physical, psychological, social and spiritual aspects of the illness’ impact on the child and family. This includes parents, siblings and grandparents; as well as the unique needs of schoolmates and their community. From the beginning of the diagnosis, they become partners and develop deep relationships with the child and everyone in the family.
Kangaroo Kids can benefit children and families who are affected by illness or conditions that limit life expectancy, such as:
- Neurodegenerative disorders
- Severe metabolic or genetic diseases
- End-stage cancers
- Severe neuromuscular diseases
- Inoperable cardiac defects
- Severe congenital anomalies
- Severe multi-system disorders
Pediatric Supportive Care is different from hospice. You do not need to choose to stop treatment measures for the child, and your Pediatric Team will work closely with your Treating Medical Team.
Goals of Our Pediatric Supportive Care
- Creating the best quality of life for children and their families
- Relieving suffering
- Controlling symptoms
- Encouraging children to be at home with their families, when that is the families’ goal
- Providing caring expertise and support so families feel they have shoulders to lean on and they’re not alone
- Encouraging children to maintain their independence and a sense of being respected for who they are
- Helping family members move through their emotions and help resolve spiritual questions